Eight surgeons and cardiologist had a meeting along with people from our insurance to discuss Jenna's heart. Six of the eight doctors agree it would be best to do surgery now before she gets sicker.
But they really don't have a lot of say in the matter, our insurance company has the final call. The insurance company has their own doctors, nurses and medical policies lined up and it is their opinion that Jenna's life is not in danger at this time. Her leaks and narrowing numbers have to be at a certain level for insurance to cover the proecure and her vitals are really good, so at this time they will not pay for surgery for her.
So we have to sit and wait, wait for her to get sicker. This is hard for me to process and accept. And while she waits, she will be on restrictions, no dance, no playing outside in extreme heat and no going to China!
This last thing just crushed her. She cried for over a hour about it, she wanted to go so bad. We promised her that once she gets all fixed one day that we will take her and Leah back to China for vacation. My parents have also decided not to go to China with us. They feel it will be best to stay behind and be there for Jenna and Alex. Jenna has never stayed the night away from us, let alone 16 days so it will be tough on her and us.
2 comments:
I'm so sorry to hear this. I don't know what insurance coverage you have and whether it's self or fully funded, but there should be a pre-service appeal process and I would recommend you do it. Have your doctor's write letters stating why medically it's necessary for her to have this surgery. It might get denied, but it would be worth your time to ask for the appeal procedures and take a stab.
Hi. My husband and I are reviewing a file for a little girl with TOF. Would you be available to share your experiences and give some advice? If so please email me at bjbgarrett@yahoo.com. Thanks so much.
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