On The Wings of Destiny

Somehow destiny comes into play. These children end up with you and you end up with them. We witness a miracle every time a child enters into life. But those who make their journey home across time & miles, growing within the hearts of those who wait to love them, are carried on the wings of destiny and placed among us by God's very own hands.
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Friday, January 14, 2011

My daughter, the bravest person I know

I'm honest in saying that my 30 pound, 5 year old daughter is the bravest person I know. She has been through so much her five years on this planet. She has had many health issues and is never scared by the test they have to perform on her. She likes to be explained what each procedure will intell and what the purpose of the procedure is.
Yesterday her school called because she was having chest pains. Her wonderful cardiologist wanted to see her right away so within 45 minutes after the call she was already having test performed on her. He first thought the chest pains were not related to her heart, but brought on by acid reflux. Her sonogram revealed that the valve is still leaking quite a bitand will have to be replaced one day in the next year or so, but the hole in her heart (VSD) had closed up on it's own. So that was good news and we were very happy the chest pains weren't stemming from her heart. They sent us over to Kosair hospital for blood work and chest X-rays, standard stuff because she takes heart medication they have to monitor these things.
This morning the doctor called me and advised me that her potassium is dangerously low and we need to stop her heart medication ASAP and her diet this weekend should be high potassium foods. She will have to be rechecked on Tuesday and we will go from there on what needs to be done to help her. Her heart is also more enlarged then last year, so he has to recheck her in 6 months instead of 12 months. the had first hoped not to have do do surgery until she was closer to her teenage years ,but we the amount of leaking and the strain it is causing her heart, it looks like it will be in the  next year or two. 
She never complains about the blood drawn or procedures, she never crys. She smiles and enjoys her life.  We sure learn many lessons from this little girl and we know how blessed we are to have her.
We love you to China and back Jenna Leigh!      
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1 comment:

Amy said...

She is such a brave little girl, and goes through life with the most optimistic outlook I've ever seen in someone so young...I could probably say she's the most optimistic I've seen in anyone of any age! She is a huge blessing to this family, and she's never let anything get her down. I'm grateful that she goes to a school where her health needs are paid attention to, and that she has a doctor who is so on top of things. I love her so much, and she makes me so happy.

January 15, 2011 at 1:20 PM

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